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Biomedical OdysseysFetal Cell Experiments from Cyberspace to China$
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Priscilla Song

Print publication date: 2017

Print ISBN-13: 9780691174778

Published to Princeton Scholarship Online: May 2018

DOI: 10.23943/princeton/9780691174778.001.0001

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Mobilizing the Paralyzed Online

Mobilizing the Paralyzed Online

(p.25) Chapter 2 Mobilizing the Paralyzed Online
Biomedical Odysseys

Priscilla Song

Princeton University Press

This chapter traces the spatial and temporal dynamics of CareCure—an online discussion forum devoted to research and treatment for spinal cord injury (SCI). Created from a U.S. neuroscientist's experiment in caring and curing, the CareCure website links the scientific pursuit of the cure with the construction of a community for those living and dealing with SCI. The cybersociality engendered by CareCure has produced a new form of mobility that might otherwise be lost in the offline, visceral world of chronic paralysis. The chapter demonstrates how this virtual forum has fostered a technologically mediated social movement of patients, families, researchers, and doctors who pursue experimental therapies for conditions considered incurable by conventional medicine.

Keywords:   CareCure, online discussion forum, spinal cord injury, cybersociality, experimental therapy

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