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Biomedical OdysseysFetal Cell Experiments from Cyberspace to China$
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Priscilla Song

Print publication date: 2017

Print ISBN-13: 9780691174778

Published to Princeton Scholarship Online: May 2018

DOI: 10.23943/princeton/9780691174778.001.0001

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PRINTED FROM PRINCETON SCHOLARSHIP ONLINE (www.princeton.universitypressscholarship.com). (c) Copyright Princeton University Press, 2021. All Rights Reserved. An individual user may print out a PDF of a single chapter of a monograph in PRSO for personal use.date: 28 September 2021

Mobilizing the Paralyzed Online

Mobilizing the Paralyzed Online

Chapter:
(p.25) Chapter 2 Mobilizing the Paralyzed Online
Source:
Biomedical Odysseys
Author(s):

Priscilla Song

Publisher:
Princeton University Press
DOI:10.23943/princeton/9780691174778.003.0003

This chapter traces the spatial and temporal dynamics of CareCure—an online discussion forum devoted to research and treatment for spinal cord injury (SCI). Created from a U.S. neuroscientist's experiment in caring and curing, the CareCure website links the scientific pursuit of the cure with the construction of a community for those living and dealing with SCI. The cybersociality engendered by CareCure has produced a new form of mobility that might otherwise be lost in the offline, visceral world of chronic paralysis. The chapter demonstrates how this virtual forum has fostered a technologically mediated social movement of patients, families, researchers, and doctors who pursue experimental therapies for conditions considered incurable by conventional medicine.

Keywords:   CareCure, online discussion forum, spinal cord injury, cybersociality, experimental therapy

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